Peninsula Collaboration for Leadership in Applied Health Research and Care The NIHR CLAHRC for the South West Peninsula Andy Gibson – Research Fellow Patient and Public Involvement
20/10/2010
Involving the Public in PenCLAHRC
PenCLAHRC Management Board
Peninsula Public Involvement Group
Working with other organisations in the South West doing Patient and Public Involvement
Academic outputs
Access to training in Evidence Based Medicine
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Involving the public in generating research questions,
Stakeholder prioritisation
Involving the public in doing the research to answer the question
Information on what works for members of the public
Improved health services and treatments
Importantly…
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Everyone in this room can ask an important research question.
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Important questions are fundable.
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It is very important that the concerns of patients, carers and members of the public help set the research agenda.
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This is an important part of what PenCLAHRC is about.
PICO •
P
Problem/Population Who is affected by this health issue
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I
Intervention (Risk factor) What service, treatment or medicine might help
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C
Comparator People who are affected by the same health issue but don’t receive the proposed treatment
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O
Outcome How will you know it has worked?
Activity You are going on holiday to Australia. You sometimes get swollen legs on long flights and are worried about the risk of developing Deep Vein Thrombosis (DVT). You’ve heard that elastic stockings, worn on the plane, can reduce the risk of this. Can you turn this problem into a research question?
Use PICO to convert this into a focussed question.
Example questions from a workshop run with people with diabetes • •
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How do diabetics perceive their interactions/experiences with health professionals during routine examinations and treatment? Does the use of a mental health welfare questionnaire in GP based reviews result in the disclosure of a higher level of clinical depression indicators? Does a course of acupuncture result in the lowering of blood sugar in adult type two diabetes? In patients with blood disorders what is an effective alternative to taking steroids leading to a reduction in side effects? How can we ensure complete and proper sharing of information between GPs, hospital departments and opticians in people with macular degeneration? What are the barriers and facilitators? Does the reduction of carbohydrates in newly diagnosed type two diabetics reduce the blood sugars for a sustained length of time without drug intervention?
Outcomes • • • •
Two rounds of prioritisation have been successfully completed. This has generated 12 projects Two are service user initiated and one has been jointly initiated by clinicians and service users. We have engaged with over 70 service users
Service user comments: “I liked seeing an honest interest in peoples contribution to research” – Participant at the Totnes workshop “Very good, very useful ...informative ... told you exactly how to go about putting forward a question” – Participant at the Barnstaple workshop
Strengths and weaknesses of this approach Strengths • Identify potential new areas for research • Public able to influence the research agenda • Ensures PenCLAHRC is addressing issues relevant to the public Weaknesses • People may feel they have lost out if their question is not taken up
What happens next?
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PenCLAHRC website & “Question Tool” – under “ASK” on the main page – http://question.penclahrc.com Andy Gibson is available for support:
[email protected] or 01392 262913 Other ways to get involved in PenCLAHRC Prioritisation Feedback
